Blog

22
Nov 2021

Possible Solution to Endometriosis? Oxidative Stress – Molecular hydrogen – Antioxidants – Endometriosis This article is not like my previous blogs. This one is more research orientated and somehow I believe in this one strongly. First, I am not a medical doctor and I am not providing any medical advice. This is simply my views as a sufferer of endometriosis and my quest to bring information to people.  This also is a request to the medical authorities and healthcare department to look into it more thoroughly and find a systematic, regular basis (monthly/ weekly) treatment for endometriosis patients – Antioxidants based or molecular hydrogen based therapy

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15
Oct 2021

Break-up with Caffeine!

  • By: Priyanka Shinde

When I was diagnosed with Endometriosis in early 2020, doctors asked me to experiment with my diet. One of the first steps were going dairy free and caffeine free. My instant reaction - "I can't stop drinking the coffee! I stop drinking coffee, I stop doing the standing, and the walking, and the words-putting-into-sentences doing." Literally my case 2 years back! Everything was about coffee. My morning – start of office – post lunch – evening break – after work; My friends argued about me having caffeine in my veins more than blood. The aroma of coffee itself was intoxicating for me. Being thrown into the uncharted territory of learning to live

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You could fly to the moon 456 times before getting an Endometriosis Diagnosis, study finds. - Alice Broster of Forbes recently published an article that gives a peek into the life of women suffering from Endometriosis. In the time it takes for women to obtain an accurate diagnosis, she could -  fly to the moon 456 times, run 14,231 marathons, climb mount Everest 45 times! - Ughhh. This one got me.  I have said this before - #1in10 women! Currently, 200 million+ women are affected by this disease around the world. For us, this journey to the right diagnosis averages between 7 to 12 years. In some cases, it takes more than 14 years to just diagnose.

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12
Jul 2021

I am no Blogger. I am just here to share and hope to help more girls like me. A 30-year-old middle class girl from India. An Architect by profession. A basic girl who just wants to live her dreams. I am no writer. But ever since Endometriosis entered my ordinary life and made it extra-ordinary, I have a lot say. If I choose to share, I know that my vulnerability may help others finally receive their own diagnosis by learning about familiar symptoms. For those who have already been diagnosed, seeing me open up about my journey may help them feel less alone. I was lost. I was clueless. And I thought I was alone. The disease that affects 1 in 10 women, had me on my knees, left to feel

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05
Mar 2021

The Barren Truth 

  • By: Samantha Denäe

Defined by Merriam-Webster, barren is “not reproducing, such as being incapable of producing offspring – used especially of females or matings; not yet or not recently pregnant.” This term and more importantly, the emotion behind it are what many women experience today especially when living with Endometriosis, the leading cause of infertility predominately in Black women, yet it’s not being discussed much.   When I was diagnosed with Endometriosis, I was told my fertility had been cut in half and I needed to decide on what my next steps would be. Most physicians I saw would suggest having a baby in that moment considering my age in

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22
Jan 2021

Laparoscopic procedure is a minimally invasive procedure commonly used to diagnose Endometriosis as well as to remove mild to severe endometriosis tissue. With this particular procedure, a small abdominal incision is created to insert a laparoscope, a lighted viewing instrument. “Lap surgery” as it is typically referred to, is a difficult procedure to endure and it’s important to be well prepared prior to. Here are ten tips to prepare for a lap procedure: Recovery time is typically 6-8 weeks, not 4: In most cases, surgeons will tell you recovery time after surgery is 4 weeks – it is not. Your body needs more time to recover. Although the procedure is

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01
Jan 2021

Erasing Endometriosis Myths

  • By: Samantha Denäe

The myths that surround Endometriosis are astounding. Whether it be as small as hair type or as grand as racial bias, what people believe about Endometriosis can be misconstrued as fact and can cause a prolonged diagnosis in women. Let’s dispel some myths about living with Endometriosis.  1. MYTH: Endometriosis is a “Rich White Woman’s disease”.  FACT: Endometriosis affects an estimate of 1 in 10 women worldwide and is growing steadily. Some believe women with Endometriosis are extremely ambitious career women who tend to have a particular economic status and who typically do not want children until their late 30s. This myth can cause

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25
Dec 2020

Have you ever been in the middle of a sentence and lost your train of thought? Forgotten a name? Even struggled to complete a simple task? It happens. We all have “brain fart” moments, but when it happens more often than not, you start to wonder if something else is going on. Something deeper.  Before I was diagnosed with Endometriosis, I could remember everything – literally to the smallest detail and at an instant, but when Endo began to plague my life, it did the same for my memory. It started to fade and became noticeable when my brother would ask me to do something. I would think, searching my brain for answers, and nothing would come. A literal blank

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18
Dec 2020

Sight Unseen

  • By: Samantha Denäe

To have a painful period is a job within itself, but to have a painful period while dealing with Endometriosis (unknown at that) becomes a much more difficult job. My 20s was a difficult time for me. Juggling college, collegiate activities, friends, and work all while struggling to manage my debilitating period was a chore. As the months went by, my period was seemingly getting worse. In many instances, I needed emergent care, but I was always told my period was normal, so I never sought help further than an OB/GYN. It wasn’t until a traumatizing moment during my period when I began to understand that this was not the case. It’s day three of my cycle – the worst day out

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26
Oct 2020

Endometriosis: But your tests are all negative?

  • By: NANCY PETERSON of NOOK NEWS

So often we get questions in our Facebook group about diagnostic studies for endometriosis. Patients are told repeatedly, your MRI/CT Scan/US/colonoscopy showed nothing, so you are disease free. Often they are told by family, friends, and doctors alike to stop obsessing about their symptoms, because they do not have endometriosis. This makes the path to diagnosis long and difficult for the patient. Since classic endometriosis symptoms are so pervasive and painful, these women persist in seeking answers. Still, on average, it takes 9 years to get a diagnosis. While scans can RULE IN endometriosis (particularly deep infiltrating endometriosis and endometriomas), they CANNOT

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20
Oct 2020

How women's 'health care gaslighting' went mainstream

  • By: Ashley Fetters is a writer based in New Jersey, and a former staff writer at The Atlantic.

Appeared in the The Atlantic, written by Ashely Fetters (10/08/2018) It started early in the year. In January, a widely cited Vogue cover story on the tennis great Serena Williams, who gave birth to a daughter in September of 2017, told the harrowing tale of how Williams had to urgently insist to the hospital staff in her recovery room that what she was experiencing after her C-section was a pulmonary embolism in order to get the treatment she needed to stay alive. “The nurse thought her pain medicine might be making her confused,” the story reads. A month later, Vogue published an essay by the Girls creator Lena Dunham on her

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TEMPLE THERAPEUTICS B.V. MOMENTUM BUILDS INTO $45M RAISE TO ADVANCE PIPELINE; WINS $3 MILLION FUNDING IN EUREKA EUROSTARS PROGRAMME TO DEVELOP NOVEL THERAPY FOR OVARIAN AND SOLID CANCERS (AUGUST 20th, 2019 – GELEEN, THE NETHERLANDS)-- Temple Therapeutics, B.V. (the “Company” or “Temple”), a clinical stage biotechnology company engaged in the development of first-in-class therapeutics for post-surgical adhesion prevention, endometriosis, and oncology, announced today that the Company and its consortium partners will be receiving non-dilutive funding of $3 million to develop a novel therapeutic based on the discovery of a novel target found in a

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Geleen, The Netherlands Temple Therapeutics BV (the “Company” or “Temple”)- September 10, 2018-Temple, a clinical stage biopharmaceutical company focused in developing therapeutics for fibrosis and oncology, announces the publication of groundbreaking mechanistic data for Evitar™ in Reproductive Sciences, a peer reviewed journal of the Society of Reproductive Investigations. Post-surgical adhesions are broadly recognized as the single greatest cause of surgical complications. Moreover, they have evaded effective intervention, until

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